Dr Eva Reinhold-Kelller,
www.cssassociation.org is a website for css patients.
The founders are American, I am their European contact person.
We work together with the CSSISG- supportgroup. Here, we are 355 css patients! (www.churg-strauss.com)
Since this disease is so rare, it is in our interest to have international contacts.
We have found some researches that are done in causes/ finding therapy for css. We have asked researchers for an up-date in their research, for our website.
Dr. Wechsler in Boston does research with 80 css patients.
Dr. Guillevin in Paris with 96 patients.
We have contacted them for information.
Could you tell me anything about the css research you told me about in the Bad Bramstedt Clinic with 150 css patients?
Is this research still going on?
Can new patients participate?
Can not-German patients (Holland, Belgium) participate?
Can you tell us anything about the results of this research?
Please write in German or English. (patients ask us about this on the CSSISG).
If this is not the right place for this information, please tell me who to contact.
Thank You, Marian M.