to this website.

Are you a vasculitis patient yourself?

Is someone close to you suffering from vasculitis?

Whatever your reason for visiting this website is, please feel welcome.

I would like to make one thing perfectly clear: I am not a medical expert but a layman. Anything you might read on this website should therefore be considered as advice from a good friend, not as medical advice from a doctor. Even seemingly little things like a change in your diet, which somebody might have suggested in a patient’s story or in our forum should just be taken as an idea you should discuss with your doctor. Vasculitis is too severe an illness for trial and error. Better rely on medical experts in this field.

Keeping that in mind I do hope that you enjoy your visit.

My aim is to educate people about vasculitis, so that one day in the future if somebody says “I have been diagnosed with vasculitis” people simply know what the patient is talking about. Hopefully you will find at least some of the answers to your questions regarding vasculitis. Sometimes it helps to browse through the patients' stories just to see that you are not the only one suffering from such a rare disease.

In the first days of this website it was intended to be the voice of the German Vasculitis Support Group. In the meantime things have changed a bit, and the website is not as closely connected to the group any longer, and although it is still acting as its internet-voice it has become much more.

All the reports have been written by me if not stated otherwise.

All the patients’ stories have been anonymized by me, they have not been expurgated or changed in any other way. Please bear in mind that all the hints and ideas you might find in the stories should not be exercised without proper consultation with your doctor!

Should you encounter any problem please don’t hesitate to contact me. You can find all the data necessary on the “impressum”-page.

Enjoy your visit!

Birgit Wiedenmann-Naujoks

01.September 2002 - 01.September 2012

A big thank you to Simon Maroldt for this beautiful wreath

Welcome to the English section of our website. I try to translate as many of our German articles into English, but since all is done on an honorary basis there won't be the full range of our German articles available in English.


August 2012
Anke's Story on Vasculitis

July 2012
Angelika tells her story on LcV

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