Peripheral Neuropathy

[Marian M. (Archiv)]

I have a question on peripheral neuropathy. I am a Churg-Strauss patient and was diagnosed one year ago. My medication was in the beginning 60 mg. prednisolon and within 6 months I could taper the pred. to 10 mg. The last months I lowered the pred to 6 mg. and after a minor flare back to 15 mg. and now 9 mg. I was not given any other medication. I'm doing pretty well except for the pain in my legs. I read that it is possible to have an isolated active vasculitis in the peripheral nerves while your bloodtests are good (mine are ok eos 1-7%, crp 1, sed.rate 15). I had a nerve conduction test and an EMG which showed some neuropathy (not severe) but the neurologist told me that with these tests you don't know if the neuropathy is old (remainder from the vasculitis I had last year when I had 29% eos, crp 61) or new. So how can I know if the pain in my legs is from an isolated active vasculitis or not??????

I write to you from the Netherlands. If you answer my question in German it's ok for me, I'm able to understand it.

Marian.

[PD E Reinhold-Keller (Archiv)]

Hallo!

Ich antworte in deutsch, damit es möglichst viele lesen können. Mit letzter Sicherheit kann man nur über eine Nerven-Gewebeprobe beweisen oder ausschließen, dass noch eine aktive Vaskulitis besteht. Andererseits ist es nicht ungewöhnlich, dass nach abgelaufener Vaskulitis Schmerzen dauerhaft bleiben können. Machen Sie einen Therapie-Versuch mit Gabapentin oder Lyrica, bds Medikamente speziell gegen diese Art Schmerzen.

Alle guten Wünsche

PD Dr Eva Reinhold-Keller

Hamburg